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Tuesday, 25 March 2014

Digital Inclusion - A few thoughts

Much speak of digital inclusion flies around training people to use stuff.

PLEASE STOP.

If people havent got stuff, and net access theres really little point to that.

Whats needed is a social utility, part of infrastructure.

How simple is , for instance ...
Wifi to estates / let property as PART of the portfolio of provided services, an outcome//benefit/service associated to and run by the landlords?

If landlords provide the wifi by whatever means, tenants wont be spending money on broadband instead of rent when things get tough.
(thats for those who can actually GET contracts, lots cant)

It then removes one obstacle to digital inclusion that is rarely spoken of.

One simple investment infrastructure that effectively enhances contact and engagement with tenants. With the wider social benefit of one hole in digital inclusion being filled.

Wider, working with councils to provide to all?

What do you think? Ubiquetous Wifi?


Monday, 24 March 2014

Luxury on the sick? NOPE

I need one of these. Cant afford though > http://www.ebay.co.uk/itm/External-Battery-Charger-HP-6720-6730-491278-HSTNN-IB51-/400216443724?pt=UK_Computing_LaptopAccessories_PowerSupplies&hash=item5d2ec24b4c

Or i need a new charging port, but thats likely over 150 quid.

So thats impossible on the money I get for ESA, but everyone wants Digital, and I do stuff digital.

So mr IDS and all media. THIS ISNT LUXURY and yet its stuff you all can DO without blinking.

So luxury on the sick? Get real will ya.

Saturday, 22 March 2014

How little I knew about : Epilepsy


So people Dont know about this, I didnt until a lady who has epilepsy told me about it. 

Strange how people know so little about illnesses. And they panic too if they see fits. Someone who lives quite close has epilepsy and I whats commonly called "boned up" on what to do if I see him fit. 

I realised I didnt know about it at all, even though I know several who have it. More shame on me. 

"There's so much more to living with epilepsy than having seizures. There's depression, insomnia, low self esteem, low self worth, no confidence, sexual issues and more."

So 

In support of awareness: 

Courtesy of : Epilepsy Action 

The definition of sudden unexpected death in epilepsy (SUDEP)
The causes of SUDEP
Risk factors of SUDEP
Ways to reduce the risks of SUDEP if you have epilepsy
Ways to reduce the risks of SUDEP for someone who is having a seizure
Further information about SUDEP

Introduction 

Epilepsy Action believes that it is very important for people with epilepsy and their families to be aware of the risks associated with epilepsy. This information is about one significant risk, and that is sudden death due to epilepsy.

It is important to remember that the risks of dying because of epilepsy are low. There are also things you can do to make the risks even lower.

Many people who knew somebody who died due to SUDEP have told us they wished they had known more about the risks, before the person died. Therefore, the aim of this information is to raise awareness of the risk of sudden death associated with epilepsy. It also offers practical advice and suggestions on ways to reduce this risk.

There have been many studies carried out into SUDEP and research is continuing. However, SUDEP is still not fully understood by medical professionals. In this information, we can only tell you about the current understanding of SUDEP.

If you would like to discuss anything to do with SUDEP, you could speak to an adviser on the Epilepsy Helpline, freephone 0808 800 5050 (UK only). You could also contact your family doctor, epilepsy specialist, or epilepsy nurse.

The definition of sudden unexpected death in epilepsy (SUDEP)

If a person with epilepsy dies suddenly and unexpectedly, and no obvious cause of death can be found, it is called sudden unexpected death in epilepsy (SUDEP). Sometimes, it is called sudden unexplained death in epilepsy.

The causes of SUDEP

SUDEP has been shown to be connected with seizures. The exact cause is not known and there may be no single explanation. However, it is thought that seizure activity in the brain may sometimes cause changes in the person’s heartbeat or breathing. This could cause the person to stop breathing or their heart to stop beating.

Risk factors of SUDEP

It is estimated that SUDEP happens to one in every 1,000 people with epilepsy. There is no way of predicting who will be affected by SUDEP. However, some people with epilepsy have a higher risk of SUDEP than others. The single most important risk factor is uncontrolled generalised tonic-clonic seizures. This is a type of seizure that causes the person to lose consciousness. Their body goes stiff and then starts jerking.

SUDEP has occurred in people who had seizures very often, and also in people who did not have them very often. However, the risk is thought to be higher, the more seizures you have. The risk of SUDEP if you are seizure-free is very, very low. And, SUDEP is rare in people who are newly diagnosed with epilepsy.

Any of the following things are thought to increase a person’s risk of SUDEP.

Having uncontrolled generalised tonic-clonic seizures
Not taking epilepsy medicines as prescribed
Having seizures that are not controlled by epilepsy medicines
Having sudden and frequent changes to epilepsy medicines
Being a young adult (in particular male)
Having sleep seizures
Having seizures when alone
Drinking large amounts of alcohol
Ways to reduce the risks of SUDEP if you have epilepsy

Seizure control
The most effective way to reduce the risk of SUDEP is to have as few seizures as possible. If your seizures are not controlled, here are some ways that you can manage your epilepsy, to try and reduce them.

Always take your epilepsy medicines as prescribed.
Never stop taking your epilepsy medicines, or make changes to them, without talking to your doctor first.
Make sure that you never run out of your epilepsy medicines.
Ask your epilepsy specialist or epilepsy nurse in advance what you should do if you ever forget to take your epilepsy medicines.
If your seizures continue, ask to be referred to an epilepsy specialist for a review of your epilepsy. They may be able to suggest changes to your epilepsy medicines, or other treatment options, which may include surgery.
Keep a diary of your seizures. This can help doctors when they are considering the best treatment for you. It may also help you to see if there is a pattern to your seizures, or anything that triggers your seizures.
Avoid situations which may trigger your seizures. Common triggers include forgetting to take epilepsy medicines, lack of sleep, stress and too much alcohol.
If your epilepsy is very difficult to control, ask your specialist if you could be referred to a specialist epilepsy centre for treatment. Contact Epilepsy Action for more information about this.
Epilepsy Action has more information about epilepsy medicines, surgery, seizure diaries and seizure triggers.

Other ways to reduce risk

If your seizures happen at night, consider using a bed alarm, which can alert another person if you have a seizure. This will enable the person to help you. For example, they can put you in the recovery position or call for an ambulance, if necessary. (Be aware that bed alarms are not always perfect. They may sometimes miss seizures or go off without a reason. And it’s important to know that there is no proof that bed alarms reduce the risk of SUDEP.)
For information about alarms and manufacturers, you can contact Disabled Living Foundation’s equipment helpline. They provide information about suppliers of specialist equipment to help with everyday living.

Tel: 0300 999 0004 (calls charged at local rate)
Textphone: 020 7432 8009 (calls charged at standard rate)
Email: advice@dlf.org.uk

The Disabled Living Foundation's website is called Living made Easy.

Telecare (alarms linked to a help centre)
Website: livingmadeeasy.org.uk/telecare

Bed alarms
Website: livingmadeeasy.org.uk/bedroom

Tell people about your epilepsy and let them know how they can help you if you have a seizure. You may choose to wear identity jewellery or carry some form of epilepsy awareness card to make other people aware of your epilepsy.
Having seizures when you are alone is a risk factor for SUDEP. You may wish to bear this in mind when you are making plans for where you live and what you do. For example, you may choose to live with other people.
Some people who have sleep seizures use anti-suffocation pillows. These may be safer than ordinary pillows, although we don’t have any research that proves this. If you think an anti-suffocation pillow would help you, please talk to your epilepsy nurse or epilepsy specialist. They will help you to decide whether an anti-suffocation pillow would be a good idea for you. 
For details of where you can buy anti-suffocation pillows, contact Epilepsy Action.
Epilepsy Action has more information about safety and epilepsy, identity jewellery and epilepsy awareness cards.

Ways to reduce the risks of SUDEP for someone who is having a seizure

You may be with someone when they have a seizure which causes them to lose consciousness. Here are some things you can do to help them recover. Your actions may also reduce the risks of SUDEP.

Remember ACTION for tonic-clonic seizures:

A Assess
Assess the situation – are they in danger of injuring themselves? Remove any nearby objects that could cause injury
C Cushion
Cushion their head (with a jumper, for example) to protect them from head injury
T Time
Check the time – if the seizure lasts longer than five minutes you should call an ambulance
I Identity
Look for a medical bracelet or ID card – it may give you information about the person’s seizures and what to do
O Over
Once the seizure is over, put them on their side (in the recovery position). Stay with them and reassure them as they come round
N Never
Never restrain the person, put something in their mouth or try to give them food or drink
The recovery position

The recovery position

Call for an ambulance if...

You know it is the person’s first seizure, or
The seizure continues for more than five minutes, or
One tonic-clonic seizure follows another without the person regaining consciousness between seizures, or
The person is injured during the seizure, or
You believe the person needs urgent medical attention
Further information about SUDEP

SUDEP Action

SUDEP Action offers support and information for people affected by SUDEP and other bereavements related to epilepsy. They also promote research into the causes of SUDEP.
Tel: 01235 772 852
Website: www.sudep.org

This information was written by Epilepsy Action’s advice and information team with guidance and input from people living with epilepsy and medical experts.

If you would like to see this information with references, visit the Advice and Information references section of our website. See SUDEP.

Code: F006.03

Epilepsy Action would like to thank Dr Lina Nashef, consultant neurologist at Kings College Hospital, UK for her contribution to this information.

Dr Lina Nashef has no conflict of interest to declare.

Friday, 21 March 2014

DYSTOPIA

In Wisteria Kingdom where one party controlled everything.

There were many forms to work.
Many forms for support to live payments.

Work and support were both available, the forms were so proliferate.

And people were confused over forms and fell by the wayside.

And The Sub leader of Forms said to the leader, Theres too many supports. Lets make it ONE support.

And so many more forms were designed, confusing people even more.

The Leaders of Wisteria rubbed their hands as less money went from the coffers that were , rightly , set aside.

That led to accountant of Wisteria setting a zero based budget.

And no one in departments or advice services knew what zero based budgets were, and underbid for necessary funds.

Then there were loads of forms, all justified for either work entitlement or support.

This cloggeed the system.

They tried to solve it, the clerks, but couldnt.

The Housing Clerks collecting rent were very out in a far corner of the offices.

The people getting the one Support payment had more disposable income than the previous system had seen , and as NONE of the system provided fair life, they claimed it themselves, leaving the housing collectors short.

The housing collectors spoke to the governance, who spoke to the overlords who said collect.
FROM MILLIONS

The Justice department were engaged. "these people need to pay their occupancy fees" was the edict.

The Housing collectors failed to engage newly enabled populace of Wisteria and collected pittance... leading to the Justice Department looking at either mass apply for evictions and deal with millions of displaced people. Or Cancel new system.

The Justice department then said : Let them live there.

Other departments were clawing with their forms and intent to get the money they were told they should extract.

It all fell apart and failed.




Wednesday, 19 March 2014

What this Govt Think About calling early elections:

REGARDING those petitions calling for an early election: I repeat this info FROM your beloved govt: - 



Govt Comment on the Legal Lock of fixed term parliaments : Your Government writes :

The Government will not seek to dissolve Parliament before 2015. We came together at a time of crisis to fix the country and ensure our long term prosperity. We intend to secure a country in a better state than when we came into office. Although we know that not everything we do is popular, we know it is necessary for Britain to rebuild and compete in the world. We are making progress and keeping our promises by cutting the deficit, cutting crime and immigration, reforming our welfare and education systems to help people work hard and get on. We have cut corporation tax and are slashing red tape to make Britain a good place to do business, and have increased the personal allowance to cut taxes for millions of low and middle income earners, frozen council tax and cut fuel duty to help families with the cost of living.

Practically, the Fixed- term Parliament Act 2011 abolished the Prime Minister's prerogative power to dissolve Parliament. The Act provides that Parliament can only be dissolved early if a Government is unable to secure the confidence of the House of Commons within 14 days of a no-confidence vote, or where at least two thirds of all MPs vote for an early general election. The legislation established five year fixed terms for the UK Parliament. The next General Election is therefore planned in law for 7 May 2015, and polling day will ordinarily be the first Thursday in May every five years. A debate in Parliament on an e-petition is unlikely to result in legislation to undo this legal lock.

Why Bowel Disease can be scary...

Do you want to know why bowel disease can be scary every time you feel an ouch?

Trigger Warning: This contains complications can be experienced with one of my invisible illnesses. 




This is for information, as often I have people disbelieve me of its seriousness so here it is: 


The most common complication of sigmoid diverticulosis is diverticulitis, 

which occurs when the diverticula become infected and inflamed. 

This causes a fever, intense pain in the lower left abdomen, a fever, nausea, and increased urination if the infection is near the bladder. 

If diverticulitis is left untreated, it can cause peritonitis, a condition in which waste from the intestines enters the abdominal cavity, causing severe inflammation and infection. 

Once this happens, infection can spread to other parts of the body through the blood, a life-threatening condition known as sepsis.


Tell me i'm not ill..... nope.... you cant. 


Saturday, 8 March 2014

Advice If Sanctioned - by Samuel Miller

Claimants who have been unjustly or egregiously sanctioned by JobCentre Plus are asked to read http://mydisabilitystudiesblackboard.blogspot.ca/2014/03/how-to-challenge-your-benefit-sanction.html, and should consider filing a complaint with the UN's human rights office:

Ms.Magdalena Sepúlveda Carmona, Special Rapporteur on extreme poverty and human rights
Office of the United Nations High Commissioner for Human Rights (OHCHR)
Palais Wilson
52 rue des Pâquis
CH-1201 Geneva, Switzerland.
E-Mail: srextremepoverty@ohchr.org

See: http://www.ohchr.org/EN/Issues/Poverty/Pages/MSepulveda.aspx 
and http://www.twitlonger.com/show/n_1rp0uui

Please be aware that the OHCHR cannot base their findings and recommendations solely on media reports. It is recommended that claimants submit personal evidence to OHCHR human rights officials.

Friday, 7 March 2014

IMPACT? Is this Impact enough? - A Letter I got ...

Dear Jules etc etc, and an explanation this should remain anonymous...


-----------------------------


I KNOW SOMEONE who is being murdered. He doesn’t know it, but he is. And the
perp, his killer, is walking free, and probably will continue to do so. You see, many
years ago, in a place I cannot name there was a company whose identity is unknown.
It had an accident, and there was a toxic leak which polluted the water table for miles
around for years afterwards. The victim, Stephen, lived nearby as a young boy and so
he bathed, showered in and drank this water. The poisons and heavy metals were
absorbed and integrated into his growing body, causing mutations and storing up
major problems for later in life.
This is nothing to do with his murder.
He is an innocuous, almost invisible kind of man. You know the sort… you see
plenty of them in bus queues on rainy days, and your eyes just kind of slide off them.
If you work in an office – which is where a lot of them seem to congregate – you will
leave your desk to fetch coffee or run an errand, and he’s the one you’ll either bump
into or find lurking at the back of the lift.
At the monthly evening out at the pub, you’ll almost sit on him, yet find that when
you actually talk to the guy he’s a pleasant, well-spoken and slightly shy kind of
fellow with a wicked wit and sharp mind… only to have forgotten all about him by
Monday morning despite your best intentions. He’s the one in the office who is
just… there.
If you work in a shop, you’ll find him tucked away, quietly getting on with whatever
it is he does – and usually it will be a complete mystery to you until his day off – then
you know. You find out by experience, but again, it turns out that by the next day,
with his presence restored, his invisibility has returned.
None of this is anything to do with his death.
You see, Stephen’s health has deteriorated to such a point that he is now in hospital
full-time, hooked up to machines draining the poisons from his non-functional liver.
It isn’t because Stephen drank alcohol to excess, it’s the result of the toxic spill all
those years ago that no one knows about because the company had ‘connections’
(allegedly). Again, though, it isn’t anything to do with Stephen that his killer has just
signed his death certificate in advance.
Stephen has a brother, called Michael. Michael has also been suffering with
deteriorating health, but in varied and different ways, and he finally – having run out
of savings to live off – put in a claim for social security, being too ill for work. The
claim went in during the summer. Due to the top-down incompetence of the system
supposed to provide a safety net, and due to the backlog of applications requiring
assessment, Michael only heard about any decision just after Christmas, and went to
meet his appointed contact at the social security place.
Yet again, this is nothing to do with Stephen’s murder. Michael explained his health problems to the appointed contact, who could see quite
clearly that Michael is not a well man… and that the health problems are severe
enough to prevent any commitment to anything which is considered to be
employment, and the meeting went cordially.
A couple of weeks later, Michael was called by Atos to attend a Work Capability
Assessment, and after rearranging the appointment, went on the due date – only to
find, once he had travelled for nearly two hours to get to the town where the test
centre is, that they phoned him and asked to cancel. He declined, and insisted that as
he had made such a Herculean effort to get there, he must have this dreaded W.C.A.
After a while, he was phoned again with a slightly later time. He went and had the
assessment, which he considered to be mostly irrelevant, but felt he was dealt with in
a courteous and genteel manner. Far different from what he had been led to believe.
Once more, this is disconnected from Stephen’s murder.
A month after the W.C.A, someone, a Decision Maker at the social security phoned
Michael to make an appointment for a ‘telephone interview.’ Michael thought it was
because the original application for payments and W.C.A. did not quite match up due
the Michael’s doctor diagnosing and investigating more ailments since the form went
it, all made worse by worrying about his brother Stephen’s near-terminal condition.
The time came, the phone rang, and Michael answered it. During the conversation, he
was told that he was disqualified from illness payments because they knew the
distance from that bus stop to the test centre, he was deemed as fit to be working.
This was regardless of the pain, the anguish and length of time it took to do it, and
because he had actually attended the W.C.A. He commented on the absurdity of it:
attend the interview or get no payments, but by attending it proves you fit to work and
your payments get stopped. There was silence on the other end of the phone. The
call concluded.
Michael’s world fell apart so fast he couldn’t even begin to understand what had
happened. His interim payments were now stopped, and that meant his housing
assistance would end. With no money at all coming in, he wouldn’t be able to pay the
rent, which meant he would be evicted and homeless. But there are more points in
this puzzle to connect to get the picture.
The only thing that will save the life of his brother, Stephen, is a liver transplant –
which is one of the reasons he is in hospital. The only reason he is on the transplant
list is because Michael is his designated care-giver after transplant… but because he
most likely will lose his home, he can’t actually do that. You can’t look after
someone if you have nowhere to do it, so Stephen will come off the list once all these
threads tie together.
And once off the transplant list, Stephen has no hope of life, so he will at some point
sooner rather than later… die.
It isn’t Michael’s fault that Stephen is going to die. It isn’t the fault of the Atos
operatives, nor of the Decision Maker at the social security. It’s mine. It’s my fault because I should have advised Michael to walk away from the
assessment, but I didn’t. I insisted that he put his foot down and made sure it got done.
That was only on the day, though. I should have insisted all those months ago that I
hekped with the initial claim form. I could have ensured he had other – proper –
advisors back when they were still able to take on new cases in this area. But I didn’t.
Dear God and Sonny Jesus, in the Names of All The Blessed Prophets I cannot name,
I DIDN’T. I KNEW BETTER AND I LET HIM GO ON AHEAD WITHOUT
SUPPORT. So Michael will lose everything, and Stephen will die, and I might just as
well as strangled him with my own bare hands.
I am Stephen’s murderer.

---------------------------------------------

The writer of this ISNT a murderer. Why are they made to feel SO much this way?

Because the SYSTEM IS BROKEN> THATS WHY.

IMPACT? YOU WANT IMPACT?


Saturday, 1 March 2014

ESA experience Summary.

On the IB to ESA WCA I had, I had to ask my MP to find out what went wrong with ATOS. They gave 12 pts only. Very different than the DWP.

I got Standard Bumph back from IDS on what happened. And they didnt address a central issue in my question either.

THIS last time, I got a completely different approach in the WCA, and I got support group, when before I had WRAG, AND NOTHING WAS DIFFERENT WITH ME.

So I lost money i was entitled to for a year - someone can calculate Support Group minus Wrag amounts and work out how much, I dont mind.

Well this last time straight into Support, the time before ATOS gave 12pts/ DWp added 6 more = wrag. With SAME INFO

I've done Other Blogs on The process , feelings , etc etc. I havent really summarised yet.
So Voila.